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Day 5 (4-13)
Morning |
Wednesday, April 13th-
Woke up this morning to hives on Cora's back and the back of her legs. If this was the only thing going on I would have given her some Benadryl and gone about my day normally but because of the other stuff with her legs, I called the dermatologist and we went in to show him. He reassured me that it was a reaction to some virus just like the other stuff was a reaction and although they were happening at the same time they we not because of each other or because of the meds she is on. He told me to give her Claritin and Benadryl and to continue the steroids as planned.
We stayed home from the gym and the library so that we could continue to potty train Molly and so Cora could just rest. Molly had 5 or 6 accidents in the morning but by the time the boys got home from school she was starting get the hang of it.
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Day 5
Afternoon |
Around 4pm I noticed a few different rashes that started popping up on Cora's legs. This made me panic a little. I called the dermatologist's office and asked for them to let the doctor know. He called me back less than a minute later and I explained to him what I was seeing. I think he could tell that I was freaking out a little bit. He told me to go into the office so I called Silas to come home and left with Cora.
Dr. Adams ended up taking a sample of skin for a biopsy, which made it necessary for Cora to receive a stitch in her leg. The numbing shot hurt and she cried but she watched as he stitched her and was so brave. The doctor upped her steroid dose and said to continue with the anti-histamine meds.
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| Four different possible diagnoses |
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Chewing on gum, waiting to get
blood drawn (although
she didn't know it yet) |
Then we headed over to the hospital for some lab work. We decided it was time to make sure nothing really serious was going on. So Cora had some blood drawn and had to take a urine sample. Again, she was super brave and after turning her head while the needle went in her skin, she looked back and watched the blood go into the little tubes.
On the way home from the hospital she said, "Today is the weirdest and best day ever! I got a numbing shot, stitches, my blood taken and I peed in a bucket!" She seriously is so positive and has a great outlook on life. I wish I could be more like her.
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Day 5
Evening |
Thursday, April 14th-
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Day 6
Morning |
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Day 6 (4-14)
Morning |
Cora woke up with hives on her belly, neck and face. Her back looks a little better though. Her legs are bruised all over but haven't been quite as bad today. Dr. Adams wanted his partner to see Cora too so this morning I made an appointment to see Dr. Colbert. He is the dermatologist that we usually see and who helps Silas with his arthritis medication. Dr. Colbert thinks that Cora has Henoch-Schonlein purpura which is one of the things that Dr. Adams talked to me about yesterday. It is treated the same way we have been treating her, with steroids, and it should go away over time. The only worry is that there is a small chance it can effect the kidneys. We went over the lab results from yesterday and there were some numbers that weren't normal. The doctor wasn't worried but wants us to come back to the office on Tuesday and then repeat the labs that day.
Writing this makes me tired. All of this fuss and worry is exhausting. I am mostly confident in the doctors and in the fact that they believe Cora is fine. Part of me wants to panic and is worried that she is most-definitely-not-OK.
And it is just the tip of the iceberg. Molly is actually doing so well with potty training (which I see as a tender mercy from a loving Father in Heaven) but I still have to make sure she is close to me and to a potty. She only had one accident today and it was when I wasn't paying attention to her after the boys were home from school. She is stubborn and independent which has helped because she wants to go potty on her own and wash her own hands, etc. but she also wants to go WHEN she is ready and I have to find every fiber of patience in my soul to nicely talk her out of having a fit. This worked all day until about 8pm when she was tired and screamed at me for 10 minutes straight. *Loved* that moment.
Silas hurt his foot badly playing racquetball yesterday morning so he is having a hard time walking and driving. Although it doesn't directly effect me like it effects him, I feel worried and I haven't had as much help when he's home that I normally would have. The last two nights he has been gone doing church duties which is normal and great...but it's just a stressful time for me and I feel a little alone.
Cleod has been really hard for me lately and I'm not sure what to do. I know I am strict with him and that he needs to be shown more love. I am not a lovey-dovey person. I show love by servicing my kids all day. I do their laundry and wash the dishes (two things that take most of my time right now). I plan for, purchase and prepare their meals. I make sure they have what they need for school and I help them with their schoolwork. I feel like I show them love through my actions but I am realizing more and more lately that sometimes others don't SEE or REALIZE all the effort and time and energy that you are putting in on their behalf. I wonder if all Cleod sees is the to-do list I have for him and for his siblings. Maybe he just sees me as the drill sergeant and not as the nurturer he needs. But he's the only one who seems genuinely annoyed every time I ask the kids to do their chores or practice their instrument or have a shower. Heaven forbid you have to clean your body!
Maybe this is a test for me. Maybe it's all happening right now to see how I will handle trials. I think I am failing. I think that I am supposed to be using patience and it feels like it's gone..at least with Cleod. I feel like I should be a peacemaker but I'm not. I am a frustrated, loud, mama bear who wants to be listened to and shown a little respect. I know that sometimes being a mom is a thankless job and that I should be selfless and not worry about praise...but sometimes it seems like some gratitude from my children would go a long way.